We created this patient organization in order to give support to, share information with and help the families of children who suffer from craniosynostosis and craniofacialsynostosis.
We aim to share our experiences with other parents and families, to discuss various topics like hospitalization, surgeries, care, follow up, school and social integrations We would welcome opinions on any related subject..
We would also like to strengthen interactions with the caregivers, whether neurosurgeons, maxillofacial surgeons, ophthalmologists, speech therapists, orthoptists, orthodontists, psychologists or psychiatrists.
Please feel free to contact us via our contact page, we will be happy to answer all your questions in the best way possible.
As a reminder, this is NOT a medical website. We strongly advise you to go and see your doctor/surgeon, should you have any concerns about your child’s health, in order to get the proper diagnosis.
The whole website has not been translated yet, but you will find the main pagesin a near future.
Nathalie GAUTUN, President of Mille et une têtes Association